Sunday, February 28, 2010
Had a great birthday!
I have had a really nice weekend. My body is rejecting me less and less as I grow closer to Wednesday. So I have been able to enjoy a few things this weekend. Mostly I have been enjoying food. What's up with that? I am ingesting lots and lots of food! It's almost like as soon I feel up to really eating....then I can't stop. Maybe I finally put on some poundage? So, we took the kids to see the Molly Brown House. Highly recommended. Christa and I went to hear a band at Q's........again, highly recommended. Sunday we went as a family to White Fence Farm and ate like little piggies......yup, you guessed it, highly recommended. I go in at 7:00 am for my PET scan tomorrow. So, keeping busy these past two days have really helped keep my mind off the inevitable scan. It is not like I will receive news tomorrow, but I will then spend two days knowing it is out there and known by radiologists and doctors. That sucks......I will keep you all posted!
Thursday, February 25, 2010
Thank you!
A very dear friend of mine sent a birthday card and on the front it says, "With joy on every birthday, count your age by friends, not years" .......According to all the love that has been showered on me and all the prayers that are lifting me up, I am very old and very blessed! I say this with tears in my eyes because I don't think I could do this with out you. On a less sappy note today has been better. I went to the book store and bought my ten year old a book called Doctor Proctor's FART Powder which seemed so appropriate for a ten year old who is so enamored with her own flatulence. Is this all ten year olds or is mine, mmmm, special? And then I walked the mall with my hubby. It felt good to get out and move!
Wednesday, February 24, 2010
a little better today.
So, today was a little better, although I slept through a good portion of it. Maybe that's why? I was up till 4am dealing with abdominal pain and other yucky issues. Then at 7am the girls school called AGAIN to replay the same recording that was played after the shooting yesterday. I had less pain in my stomach today and I seem to be eating ok. This week is a little frustrating. When I expect to feel great by Monday and on Wednesday I am still struggling with symptoms....that I am not enjoying by the way, it can really piss a girl off. On the upside I am enjoying the Olympics. I love the speed skating....maybe because of Apolo. Come on girls....can't get past the fact that he is HOT and a really fast skater! (sorry sweety) Plan on going to bed early tonight so that's it for me! Have a good night all!
Tuesday, February 23, 2010
yucky, yucky, yucky
I have to be honest....I have not been feeling well these two days. I have been having severe digestive issues for two to three days and am dealing with abdominal cramping and pain in areas I don't apprecaite enough. That's all I have to say for tonight. Have a good one...
Sunday, February 21, 2010
Oh my, what a disater!
I realize that when I am going through my extended chemo treatment......I tend to not blog as much. I am very sorry about that. But, boy do I have so much to talk about today. First of all, I had to go back to RMCC on Friday because a malfunction in my tubing connections to my 5FU pump. Apparently it sprung a leak during the night and I woke up with cytotoxic all over my chest and stomach! I was actually standing in the kitchen(surrounded by young ears) when I noticed it. And what is the first thing out of my mouth? Oh shit!!!!! So I went up stairs and washed it off, stripped my bedding and clothing to be decontaminated and then called the center. And what do you know......they wanted me to come in. I opposed this suggestion until I realized I could not repair my leak with a pantie liner....damn. So, I took my own sweet time to get there, knowing full well that they would take their own sweet time once I got there.....know what I mean? Once I saw the doc and we decided a plan of action(which was to bolus the remainder of the 5FU and then disconnect me) I mossied into the infusion center, plopped into a seat and told the nurse to finish me off and send me home. The patient across from me laughed so hard I thought she would start growing hair and said, "Care full for what you ask for!"Two hours later my tired butt rode home begging for a bed....any bed at this point.
Updates now: my brother is drinking his golytly right now and will shooting water out of his $%^ byten pm. Ha---hahaha. Ha-hahahaha. Ok, I am done laughing about that(chickle, chuckle). Please pray for a clean colon!
Updates now: my brother is drinking his golytly right now and will shooting water out of his $%^ byten pm. Ha---hahaha. Ha-hahahaha. Ok, I am done laughing about that(chickle, chuckle). Please pray for a clean colon!
Thursday, February 18, 2010
pucker-up baby!
It's 5:44 pm and all I want to do is go to bed. I am so tired and nauseated. My mouth tastes awful and my leg cramps leave little to be desired. One of these days I am going to take a picture of my lips when they cramp up...finding a little humor in the mist of all this craziness. So, if I see you during chemo week and I look like I am puckering up for a great big juicy kiss......I'm not ;). Have a good night!
Wednesday, February 17, 2010
One more down....how many to go?
So, we had a Hawaiian party today at chemo. It was great! We put up a beach scene on the wall, wore blue grass skirts, blue visors with flowers on them and blue lays. My sister actually sprayed her hair blue! Karen brought in fresh fruit and cheese and crackers which was yummy! Got a few interested (or maybe interesting) looks from all the other patients there. I am thinking all this crazy activity really threw my nurse off. One drip she set at 30cc per hour when it was supposed to be set at 300cc/hr and didn't catch it till a half hour later, then she started another drip but never opened the clamp so I was only getting normal saline for about another half hour....or more, when I looked up and notice it wasn't infusing....... so, I took the liberty to open it. Then she hooked up yet another drip when I noticed there was another large air pocket (5 inches or so) in the line. She said, "those little bubbles are OK." So I flicked it and said I am not worried about small ones....its this giant bubble going into my chest that bothers me. At least I got her attention with that and she remedied the situation. My muscles started twitching right away with the Oxaliplatin and now my legs are in a fierce charly horse. Wish you all could see this......very bizzar. I ate very well tonight, even though my mouth tastes like ground metal. March 1st is my date set up for my next PET scan. Only then will we beable to see how effective this treatment is. In the mean time I will enjoy the next 48 hours of my 5FU pump and my metal mouth!
Subscribe to:
Posts (Atom)