Friday, August 27, 2010

CT results.....

On Wednesday I went to Sky Ridge to have my cat scan done. It felt like a long day regardless of the fact that it went smooth as silk. Then I had to wait....and you all know how much I like to wait! Today I met with Dr. Jotte about my CT and next plan of action. While I was there he got Dr. Nutting on the phone and they reviewed my scan together. They concurred that the Sir spheres are doing what they need to be doing and the tumor that has been ablated is doing exactly what they hoped as well. That is the good news. There is only one minor problem. Lets see if I can explain this correctly. There is a small possibility that the necrotic tissue from the two tumors may be encroaching on each other and may change my surgical candidacy. They are worried that there may not be enough healthy tissue to make a clean margin. I am not letting this get to me, I promise you that much. I meet with Dr. Kortz on Thursday. I don't think we will have a final call that day but we will be closer.......

Thursday, August 19, 2010

moving forward

I saw Dr. Jones for wound care for my burn. He basically said not to come back unless I have something to cut into, debreed or dig out. I told him I would not be seeing him anytime soon then. You're a nice doc and all, but.........The burn is healing nicely with just the honey. Amazing. I also saw Dr. Nuttng for follow up and all seems to be well there. He is signing off my chart and sending it to Dr. Kortz. Everybody seems to be in agreement to have my right lobe removed. Sounds fun, I tell you. Especially after last weeks news of the young, live liver donor. Makes my liver all warm and fuzzy.....Just remind myself, different hospital, different surgeon, different body and God is in the mix of it all. Next step is CT scan on the 23rd and review of that scan will be on the 27th. I figure I won't meet with Kortz until after that.
The kids are having their meet-n-greet ice cream social tonight and will be meeting their teacher. I think we are all excited about this. I know I am! It's really perfect timing. I have been cleared to work again and the kids will be back in school. So, PACU gals (and boys) be ready to put me to work! It will be nice to have some normalcy before the next bit of chaos. Love out to you all!

Saturday, August 14, 2010

Definately feeling better this time.

Woke up this morning without pain. How does that happen? How is it you can have so much pain and then, poof! it seems to be gone! I am so very glad......now what to do with myself? My burn area seems to be healing well. Every time I change the dressing I put my finger on it to make sure it is not tunneling into my chest. I know, sounds gross yet entertaining!
The kids have one more week before school. I am hoping to have some fun with them before they start back. Anyone have any new ideas for entertaining kids?
Thanks again for all the prayers and love!

Wednesday, August 11, 2010

through the pain there is some good

Unfortunately, I have been having a lot of pain since the procedure. It has become quite discouraging. The percocet has not been alleviating the pain at all.......so I stopped taking them. I pulled out some old dilaudid (from my November surgery) and tried that. It definitely seems to work better than the percocet. I finally called Dr. Nutting on Tuesday and he ordered a CT for Wednesday morning (this morning at 7:30). I showed up for the cat scan at 7:15 to drink my oral contrast only to be informed that they will be doing IV contrast and the scan is not till 8:30......groan. At 8:15 I was taken back to the scanner. I laid down on the narrow bed only to curl up in a spasmodic fit of pain. Once we got through that, I laid flat only to be overcome with emotions (yes, I started to cry). To be back at the Sally Jobe envision center (where this whole mess started) was quite emotional. Finally, IV was started and scan was completed. I pulled it together and went home to wait. Officially, they found a hematoma in the area that I am experiencing all this pain. Dr. Nutting seems to think it will resolve on it's own....I will just have to suck it up I suppose. The good news is........drum role please........he also said the large tumor is responding well to the Sir spheres. In fact he said he was quite impressed at how early and how well it was responding. Shrink baby shrink! God is good, all the time!

Saturday, August 7, 2010

much better today...

Much better today.....quite tired still but the pain is bearable on just Tylenol. It just feels like there is pressure behind my rib cage, especially the left side. I am pretty sure I am going to survive yet another day to fight this little bugger! So, I guess you all are stuck with me!
Picked up my girl from camp today. She had such a great time and is already planning on next year. She was with a great group of girls! I want a tepee! She is definitely very tired from the week....I think we all are. Going to bed early is in order. thanks for all the prayers and support! I am so blessed to have you all!

Thursday, August 5, 2010

Cooked well done

Yay! My ablation is done! They went in once to heat that sucker to death unfortunately to find that the microwave was too intense for my sensitive body. The heat traveled back up the needle, burning my tissue and skin. So, he went back in and use radio frequency ablation to finish off the assassination......I think this is how I understood it all. I was in quite a bit of pain Tuesday evening but slept fairly well in between nursing care that night. Wednesday, my friend Diane and I were dressed and ready to rock and roll by nine.....then we waited and waited for the wound nurse to evaluate my burn and prescribe some care. Get this! My new age wound care consists of honey called medihoney. It is from the tee tree in hmmmm, can't remember where it is from. Pretty cool though! During our wait we played several card games, talked and went on walks to get out of the room. The walks only happened once we promised I would not smoke, drink or shoot up my port.....hmmm. Not how anyone would want to spend their birthday....happy birthday girl!
I have quite a bit more pain today. I feel like I slept in the gutter and somebody kicked me in the chest to wake me up. Not going to get much accomplished today. Percocet, take me away.......